Monthly archive for July 2016

Malarface, a Butterfly Rash Story

butterfly rash, malar rash

Autoimmune malar rash, a.k.a butterfly rash.  I have it. I have these bright red flags on my face that signal a flare.  My cheeks, just below my glasses, always glow a little, but when I start to get sick, they are really bright. I have the rash right now. And I’m pretty cranky, so here’s what I’m thinking about

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Exercise for Arthritis or Arthralgia to Reduce Pain

turtle chasing rabbit

My physical therapist told me something profoundly hopeful:  “People think of arthritis as being something that they can’t change.  But you can affect change on the process.  What you do can change your outcome.”  It is incredibly helpful to exercise for arthritis pain management.

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Chronic Disease, Invisibility and Confidence

I struggle with this.  My autoimmune disease is invisible to me. When feeling good, I deny my disease. When feeling bad, my confidence tanks because I’ve failed to feel good!  Let me try to explain what I mean, because I think other people feel this way too, sometimes.

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My Sjogrens Diagnosis Story

16 years after my first problems started, I received my Sjogrens diagnosis. Here is my year by year story, starting in 2000, and continuing to July 2016, when I finally receive my diagnosis.

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