New Aquariums

I’m getting back into keeping fish.  I’ve always liked aquariums.  I used to have a bunch of aquariums, back three houses ago, but when I moved across the state, I re-homed my fish and I set up the largest fishtank in my basement.  I felt that the concrete floor was a safer place, and I had all kinds of plans to spend lots of time down there playing with my hobbies.  I didn’t end up going downstairs all that often after all, and although I had the tank for a while, I eventually sold it because I didn’t have the

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Laundry Pedestal DIY Experience

My Experience with Laundry Pedistal DIY. In an earlier post, I mentioned that I made a laundry pedestal from the plans found here. It was pretty easy to follow, but it took me several days to gather materials and tools, and I rested in between steps because I have Sjogren’s and it’s hot out.  I learned a couple of things from building the pedestal and I wanted to share. Lessons Learned: Get quality plywood.  I got the cheapest at the store, and it was splintery, required wood fill in the knots, needed a lot of sanding to get it smooth-ish

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Rhubarb Pie after a Sad Job Interview?

papers and drink on a table

Never heard of having rhubarb pie to get the pain of shame and humiliation out of your mouth?  Here ya go.  I lifted today’s theme from A Prairie Home Companion. Applications check in, but they don’t check out. I’ve been looking for another job for months.  At first I had no bites at all.  It was like throwing my resume – and multiple hours of work – into a black hole.  For months I heard nothing, not even crickets.  And then it happened.  Around the time I decided not to fill out any more applications, tailor any more resumes or write

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Brain Fog and the Laundry Pedestal

picture of fog and deicer truck

Brain Fog Ugh, Autoimmune Brain Fog.  Usually passes fairly quickly for me, but the last week or so, I’ve had it bad and I can’t shake it.  I can’t speak intelligently (aphasia) and I forget the stupidest things. 

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Malarface, a Butterfly Rash Story

butterfly rash, malar rash

Autoimmune malar rash, a.k.a butterfly rash.  I have it. I have these bright red flags on my face that signal a flare.  My cheeks, just below my glasses, always glow a little, but when I start to get sick, they are really bright. I have the rash right now. And I’m pretty cranky, so here’s what I’m thinking about

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Exercise for Arthritis or Arthralgia to Reduce Pain

turtle chasing rabbit

My physical therapist told me something profoundly hopeful:  “People think of arthritis as being something that they can’t change.  But you can affect change on the process.  What you do can change your outcome.”  It is incredibly helpful to exercise for arthritis pain management.

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Chronic Disease, Invisibility and Confidence

I struggle with this.  My autoimmune disease is invisible to me. When feeling good, I deny my disease. When feeling bad, my confidence tanks because I’ve failed to feel good!  Let me try to explain what I mean, because I think other people feel this way too, sometimes.

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My Sjogrens Diagnosis Story

16 years after my first problems started, I received my Sjogrens diagnosis. Here is my year by year story, starting in 2000, and continuing to July 2016, when I finally receive my diagnosis.

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